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Welcome! The first 6 posts on this blog are actually e-mails I sent out to friends and family as updates about my 6-year-old daughter's diagnosis with Cyclic Vomiting Syndrome. They are letters to our biggest supporters and all those people who love our Ellie dearly. If this is your first time here and you want the whole scoop make sure to begin with the post called "First Update: After the Storm." Click Here.


Sunday, April 6, 2014

Mid-February to Mid-March: No Sleep.

I meant to write a part-two from the last blog post but things happened and none of those things included blogging.

I had been wondering about the amitriptyline, as I said in my last post. Eleanor the Great had been so well for so long (3 months) that it occurred to me that we might never know if/when we should take her off the medicine. But then... Starting somewhere in the middle of February her sleep began to take a dive. It started by just a bit of sleep disruption here or there and continued to get worse and worse. By the third week the child was NOT sleeping. I was up with her for 2-4 hours each night. At first she was able to get to school regardless of her bad nights, but by the third week she had a bad cold and wasn't sleeping and missed a whole week of school. Somewhere in the middle of zero-sleep-newborn-nights hell, it hit me that maybe because she was growing her medicine was not enough anymore. Quite the opposite than I had been thinking. Dr. Li, affectionately known as The Wizard of CVS on this blog, he mentioned last August that Ellie could be on a much higher dose of amitriptyline but we didn't change it at that time because it seemed to be doing it's job.

Sure enough, 4-5 nights after we doubled her dosage she began sleeping through the nights again. Ugh. Those were a long 3 weeks! But nothing like the week we just had...

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