Soon after Ellie was diagnosed with CVS I read (or heard) a statement about how people with CVS really need a team of physicians to care for them. The statement included a list: nursing, general physician, GI specialist, psychologist, etc, etc. I will always remember rolling my eyes and saying outloud to the computer, "Ha! That seems a little extreme."
Ellie now sees a general pediatrician, a GI pediatrician, an allergist, an Ears/Eyes/Nose/Throat specialist, a regular dentist for cleaning, a special sleep dentist, a pediatric sleep specialist and new this week...a child psychologist.
A place to write about this journey, a place for our family and friends to read updates, and perhaps a support for families who are new to Cyclic Vomiting Syndrome.
Start Here:
Welcome! The first 6 posts on this blog are actually e-mails I sent out to friends and family as updates about my 6-year-old daughter's diagnosis with Cyclic Vomiting Syndrome. They are letters to our biggest supporters and all those people who love our Ellie dearly. If this is your first time here and you want the whole scoop make sure to begin with the post called "First Update: After the Storm." Click Here.
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